Scientific Publications

2024-2026

Yara Sievers, Katharina Roser, Katrin Scheinemann, Gisela Michel, Anica Ilic. (2024). The information needs of relatives of childhood cancer patients and survivors: A systematic review of quantitative evidence. Patient Education and Counseling 126. https://doi.org/10.1016/j.pec.2024.108316

Demoor-Goldschmidt C, Lamore K, Jakab Z, de Ville de Goyet M, Heinrich S, Bathilde L, Berger C, Beek L, Beauchesne M, Borszekine Cserhati E, Brichard B, Constine LS, Te Dorsthorst J, Favreau M, Grabow D, Hinckel L, Keresztes A, Ollivier L, Sauterey B, Skinner R, Thebault E, Thierry-Chef I, Trinh S, Zadravec Zaletel L, Roganovic J, Chades-Esnault MC, Armand A. Addressing Akrasia in Childhood, Adolescent and Young Adult Cancer Survivors: Implications for Long-Term Follow-Up and Preventive Health Interventions. Cancers (Basel). 2025 Apr 13;17(8):1310. doi: 10.3390/cancers17081310.  PMID: 40282486; PMCID: PMC12025612.

Requier, R., Gimenez, C., Muraca, M. et al.  The e-QuoL project: enhancing long-term follow-up care for childhood cancer survivors through digital innovation, results of an exploratory questionnaire. J Cancer Surviv (2025). https://doi.org/10.1007/s11764-025-01854-w

Bertrand A, Escot N, Girodet M, Congiusta T, Baudry AS, Demoor C, Christophe V. Digital Tools Used to Enhance the Quality of Life and Well-Being of Adolescent and Young Adult Cancer Survivors: A Systematic Review of the Literature. J Adolesc Young Adult Oncol. 2025 Sep 12. doi: 10.1177/21565333251377393. Epub ahead of print. PMID: 40938393.

Demoor-Goldschmidt C, Michel G, Roganovic J, Thierry-Chef I, Lähteenmäki PM, Muraca M, Jakab Z, Chevenez L, Potter EJ, Garami M, Thornton KET, Lie HC; e-QuoL consortium. Addressing survivorship care gaps through digital innovation: opportunities, challenges, and ethical considerations in the e-QuoL project. BMC Cancer. 2025 Dec 19;25(1):1876. doi: 10.1186/s12885-025-14897-0. PMID: 41419816; PMCID: PMC12717762.

Jakab Z, Kővári E, Sarolta T, Garami  M. Nemzeti Gyermekonkológiai Regiszter (including LTFU problems and survivorship passport introduction) Gyermekgyógyászati Továbbképző Szemle vol.:30, issue.:3, p.:30-35. (Pediatric Continuing Medical Education Review in Hungarian).

Maas A, Bertolini E, Ostheim K, Lie HC, Demoor-Goldschmidt Ch, Garami M, Michel G, Ilic A. Information needs of adult childhood, adolescent, and young adult cancer survivors (CAYACS): A systematic review. Patient Education and Counseling. Volume 146. 2026, 109506, ISSN 0738-3991, https://doi.org/10.1016/j.pec.2026.109506.