e-QuoL (e-Health tools to promote Equity in Quality of Life for childhood to young adulthood cancer patients after treatment/survivors and their families) is an European project that will provide children, adolescent and young adults who have survived cancer with e-health tools designed specifically for and with them to help them manage their health.

The purpose of WP1 is to provide efficient management and coordination of the project and the consortium and to ensure the progress of the project towards its planned objectives. Its tasks include strategic steering, project monitoring, risk and quality management, establishment of management tools, progress monitoring, risk monitoring and administrative and financial support.

This WP aims to collect the needs in terms of unmet supportive care and assess how digital tools could improve the quality of life of children, adolescents and young adult cancer patients, survivors and families. It will consider ongoing projects (national and European ones) to collaborate with them, avoiding duplication. Overall, their objectives are to review the current state-of-the-art of e-health tools and technologies and to assess and describe the psychosocial needs of children, adolescents and young adult cancer survivors and their families.

All partners in WP3 work together to reach our three primary objectives: adapt and co-develop new content for a digital supportive care application, in collaboration with users; adapt an existing platform (Resilience) to accommodate this tool; and develop a web-based information tool for families and local support network members.

WP4 aims to implement cancer survivor passports in at least three different countries. Other specific objectives are to explore the technical integration between the new electronic tool for personalised supportive care and the passport systems; implement this electronic tool; and scale-up and ensure sustainable maintenance of this tool over time.

The main goal of this WP is to test the effectiveness of the electronic tool in at least five countries (France, Italy, Hungary, Germany and Norway). It will design and conduct a prospective cohort study of 240 children, adolescents and young adult cancer survivors.

WP6 will ensure that e-QuoL adheres to the highest ethical standards during its development, implementation and evaluation. It will ensure compliance with relevant regulatory and legal requirements related to data protection and privacy of all groups involved in e-QuoL. In addition, two reflection groups will be established to stimulate reflection on the ethical and social challenges associated with the global e-QuoL project and to address them during the project.

The main objective of this WP is to maximise the project’s visibility and impact by raising awareness about quality of life in children, adolescents and young adult cancer patients, survivors and their families and how the project can contribute to fill their unmet needs, and disseminating the project’s results to the different target groups who may use the results for their own benefit.

WP8 is under the responsibility of the project coordinator, GCS HUGO. This WP was added by the European Commission before the Grant Agreement signature, in order to put the emphasis on the importance of ethics issues in the framework of pediatric oncology. As such, all ethics deliverables are to be produced under this Work Package.